I’m struggling now to find out what is wrong with me. The chronic pain is peeling off the layers of my strength and determination. Things are deteriorating in my body in other places besides my stomach. I am no longer hiding my discomfort but I am trying to hide my fear. I know now my dream of leaving will have to be postponed until I’m better. I’m still thinking this is just a bad case of something and I will get better. Losing control of my body is causing me to lose control of my life. I’m swinging between despair and determination as the realization I am helpless covers me like a dark shadow. These are the last entries I found before I will slip into a coma. I will tell that story too from the doctor’s recollections and from mine which was a voyage to another realm.
Journal entry – November 1988
It’s almost Thanksgiving and I’m still living with this awful pain in my stomach. I’ve missed my first day of work today but will drag myself in tomorrow. I feel weak and unable to chase down the waiting orders as fast as I did before. My old black waitress shoes from Walmart feel like I’m wearing concrete blocks. I quit using the huge food trays because I can’t seem to lift them stacked with earthenware platters laden with food. Of course this means I have to make many trips back to the kitchen instead of just one. I am falling behind here at home with chores. The girls are helping by doing the laundry and getting their little brother ready for school. I’m disgusted with myself for getting sick.
Journal entry – December – 1988
I missed two days of work in a row. The boss is concerned and insisted I go to her doctor or my hours would have to be cut drastically. So I went today and he took lab work but nothing stood out as a problem. It was $155 that I was guarding in my travel money but I needed those hours at work. He said I needed extensive tests that they could do in the hospital. That is impossible of course with no insurance and needing to be here for the children. I am consumed with fatigue tonight and my muscles quiver like Jello to keep me upright.
Journal entry – December next morning
I woke this morning still exhausted and when I put my feet on the floor I could not feel them. They were numb and tingling. I rubbed them, elevated them but nothing works. Whatever has invaded my body is advancing every day. I am now truly scared. I want so badly to get through Christmas as it is a favorite holiday for us. I tried to get dressed but I am so feeble it’s impossible. I have no fever so must not have an infection I’m thinking. My body is literally shutting down. Reluctantly I asked the kids to call me in sick to work.
Journal entry – Christmas 1988
I made it until Christmas but did not really enjoy it. My travel money has dwindled down so when I recover I will have to start over, Maybe we can shoot for Spring Break. I never returned to Western Sizzlin because of my condition. I tried to work a few hours in the KOA store because I thought sitting on a stool would not be hard physically but as I stumbled home I fell and the kids had to help me up. My life is closing in on me. I’m depressed and terror stricken that I will never get better. My legs as well as my feet are numb now. My hands and fingers feel like they are asleep and my skin is hypersensitive. I can’t sleep, I can’t eat and I feel like I’m dragging around an extra 200 pounds. I’m trying not to cry but foreboding envelops me.
The beginning of the crisis has begun only I’m still not aware how my life is beginning to slip slide away. October will be the last full month of work for me. Like seeing the red engine light come on the car dash board you are not immediately alarmed but concern is in the back of your mind. If you don’t hear unusual noises or see smoke you continue to drive and check it out later maybe on payday. That’s how I handled this approaching illness. I had no medical insurance but knew when I got to Phoenix a good job would provide it and I would get the stomach problem fixed for good. I could see the finish line and attempted to drag my body to it.
Journal entry – Early October 1988
The truck broke down last week and no money for the part it needs. I refuse to dig into my secret travel money so will have to take it out of tips. Since I now have to take a cab to and from work I try to work double shifts. The cab is $15 each way so it doesn’t make since to just make a little over cab fare. I should have enough by end of the week for the part to fix it. It’s been frustrating to get a cab every night then at least every other night have him wait at a grocery store so I can buy a few necessities to keep the kids fed. On those nights the meter runs me an additional $7 as he waits. My usual abundant energy is waning from the extra work and stress. I can’t finish a shift without eight to ten Excedrin and a pot of coffee anymore and my stomach remains a fire pit. I feel I’m running out of steam. I know I’ve worked my body way beyond its normal limits for a long time but it’s not too much longer now. I have $900 saved.
Journal entry – middle October 1988
Truck is fixed so no more taxi thank goodness. I bent over in stomach pain today at work. Seems I can’t keep anything down. The boss insisted I go to emergency room so I promised I would right after work. $75.00 later they said I probably have an ulcer and sent me home with a diet sheet and Maalox. The only time the pain is halfway tolerable is if I don’t eat. I don’t understand why I’m not getting better and every day it’s harder to push through this agony. Maybe it’s just a bug, maybe it will pass in a few more days. I’ve always been healthy surly I will overcome.
The stars are out tonight and there’s a soft breeze. It’s not like the night sky in Arizona where the stars seem so close and the brilliance takes your breath away but it is a different beauty. The pain is a constant reminder that I probably won’t be able to work double shifts or weeks with no day off and that slices through my ego like a paper cut. Only six more weeks and things will be very different.
These are the last entries where I do not suspect anything is wrong with me. I’m in a race to be free and running my body into the ground. I’m so close to my goal but the condition of my over used body would be defensive against just about everything. I’m destroying my body to save me mentally.
Journal entry – End of September 1988
Fishing tournaments are in full swing this month so the restaurant stays packed way beyond closing time and the tips are rolling in. This is my first night off in seven days. Waitresses are dropping like flies from the brutal environment of carrying huge platters of steaming hot lobster, steaks and the weekend special red snapper from the overheated kitchen. Most of the customers are drunk by the time they dock and decide to eat and become belligerent about getting food and especially beer refills. These are huge parties of 15 to 20 people and my section alone has 18 tables. I had one group tonight with 31 adults and four children. This is what waitresses call “blood money” because it takes that and more to endure for your tips. But I do endure. I try not to think about the sweat running down between my painful shoulder blades as I heft another tray loaded to the hilt with burning hot plates then swing it gracefully down to a stand. How you do this and the courteous way you present depends on the amount of tip.
I have $550 saved for our traveling money so far. The rest pays bills and school lunches. I am determined to save at least $1200 by end of summer because winter is the extreme slow down for tourist towns. About 8 weeks or so it will be over for any good business until next spring. So although my headache never seems to go away, my stomach feels like I might have an ulcer and I live with leg cramps every night from over used muscles I will not give up. My dream and the kid’s stability in a real home is too important.
Arguments continue every night and day. He doesn’t know I’m planning to leave soon. He makes very little money as a maintenance man at the campground. I usually come home late exhausted from work to find him sitting around the fire pit in front of our trailer with three or four women who are tanked and think he’s wonderful because he fixes everything for them. It’s disgusting but it’s almost over. Little does he know very soon I will wave good by .
Things were looking up as my work at Western Sizzlin continued to bring money in daily. The work is punishing but I have my goal of moving back home to Phoenix soon and it motivates and pushes me along through the fatigue. The relocation to a KOA camp site has relieved some stress. Only four months to go but I don’t know it will be the last four months of living in a non-disabled world. Just around the corner disaster waits.
Journal entry – late August 1988 –
Been too busy and too tired to write in this journal lately but today is finally a day off after eight straight days. They finally hired enough waitresses to cover. The tips have been consistent allowing me to save enough to upgrade to the nice KOA very near the ocean. We are moving before dark. Next Monday I will enroll the kids in school. The owner of the restaurant likes me a lot but that’s because I work 150%. Almost all the staff are just working their way through college or supplementing their husband’s income. They are not as hungry and desperate as me so where they lag I over compensate. I know my body at 42 can’t do this forever but I just need to endure until Christmas break. When we get to Phoenix I will use my brain instead of my brawn. I can put my Associates Degree to work and even go back for bachelors.
I was hoping to get rid of him now but the money is on the night shifts so I need someone home with the kids. We argue daily with a never ending struggle of control but I must endure four months then I can fly. I will never understand why weak men seek out strong women then try to control them, must be a death wish.
Monday morning –
Love the KOA campground. The kids and I just walk a block to the ocean. There are lots of things to do like a swimming pool, game room, little store, huge community fire pits and a big playground. The kids are all enrolled in school which starts in five days. A bus comes right into the campground. It took almost all my tip savings to relocate and buy school clothes and shoes so I need to get back to work this evening to replenish my cash. I’m so grateful for the little child support from the girl’s father every month as it helped to buy school supplies and some extra clothes. I count every blessing. The kids are healthy and happy and I have a strong body to accomplish my dream and an even stronger will power to stay on task.
Once again my hopes are dashed but as you read in the journal entries below I will not succumb to victimization. I am a fighter and survivor and I’m all my children have. I still had goals and dreams that would not come to fruition for two years after an unbelievable crisis for me and the children. Never say it can’t get any worse because life will show it can.
Journal Entry – August – Wednesday 1988
We drove in to Destin three days ago. It is everything he said it would be. It looks like the Caribbean. However, seems like he never confirmed he would come back and work for the company so they hired someone else. We ended up in a small RV park nowhere near any beauty because it was very reasonable.
With no phone and little money left for gas it was going to be difficult to job search but someone had to do it. One of us would need to watch the kids and one of us had to get a quick job. Because I knew I was more driven it was going to be me and because I needed a babysitter, and couldn’t pay one, he is still alive.
I struck out yesterday walking in the scorching heat to whatever business I could find and put in 10 applications. I am desperate find something and settle in a better campground before school starts in about three weeks. I left the phone number of the pay phone in the park hoping I could hear it ring from my camper. About 7:00 p.m. I got a call from the Winn-Dixie grocery store offering me a position in the deli department. So tomorrow I start a job I’ve never done in my life at minimum wage but it’s a start and I learn fast.
This work is so exhausting and nerve racking but I don’t mind that as much as the terrible attitude of the manager. Everyone is related to him that works in the deli but me. My hours keep getting cut and now are less than 10 per week then I found out I will not get a check for three weeks! We can’t last that long. I need fast cash so knew I would need to find a waitress job that would enable me to bring home some money every day. So when I got off today at 4:00 I walked another few blocks where I noticed a Western Sizzilin restaurant. They were really busy so I knew tips would be good if you were fast and efficient and I was. I weaved my way through the customers and asked for the manager. I explained to him I was desperate for work and would even just work for tips. He said they were not hiring but to fill out an application and he would pass it on to the owner. I did and started my walk back to the trailer park feeling way more exhausted than before. Thank goodness tomorrows my day off.
At 11:00 a.m. the pay phone rang as I was coming out of the shower house. As I stumbled trying to get to it and breathlessly said hello, a voice asked for me. I acknowledged it was me and the female voice said “Do you still want a job at Western Sizzlin”? I said of course I did. The voice said, “Well I’m the owner and I need someone by 3:00 today to work until close.” I’ll be there I said. I am so elated, so relieved and so grateful. I called Winn-Dixie and quit.
It never occurred to me that I didn’t have any waitress clothes. I put on a pair of kakis and a cream colored blouse, my cleanest tennis shoes and hoped they would give me a break until I got paid. The boss was a former Virginia Slims model about 6 feet tall with white spiked hair. She looked me over and said I would have to get black pants, white blouse and black shoes soon as I could. She said she was two waitresses short so I would need to take both their tables which would be 22 tables. I said fine as I was not about to let this job slip away. Friday night was packed but I never missed a table. I stumbled home a little before 1:00 A.M. My back aches, my feet are on fire, my head is throbbing but I have $176.00 in my apron. And, tomorrow is their busiest night.
My plans are going to come together. On my day off I’ll start looking for a nice campground near the ocean with facilities the kids can enjoy and schools nearby. By Christmas break the kids and I will have the money to finally go home to Phoenix and lease a home never to roam again.